DIY SOS: The Big Build

Taal: nld
Categorie: Variete

The Sweet family in Weston-super-Mare are happy and truly inspirational in their close-knit community. Louisa (14), Max (11) and Harry (6) were born healthy, and family life was good until Harry was diagnosed with a genetic condition called Ehlers-Danlos syndrome. He is significantly hypermobile and suffers terrible pain in his joints, unsettled sleep and chronic constipation as part of his condition. He is also being assessed for autism. The family had been struggling with Harry's health issues for three years when, in 2017, after genetic testing, Louisa and Max were diagnosed with Friedreich's ataxia, a rare and life-limiting neurodegenerative condition for which there is currently no treatment or cure. It will see them become permanent full-time wheelchair users in their teens, and it may affect their speech, fine motor skills and vision.